How much I love these solutions where you're stripped of your rights to privacy be default, but if you want it back you need to invest your free time in order to go through the awesome process of bureaucracy, really for these people we're just disposable beings that should be ready to give up their limited time in order to act on any bullshit politicians think about
The issue is that an opt in solution might make the system unviable in the first place, which reduces utility for everyone. Of course, opt out should be simple, but if the majority of people don't care and the data is anonymised properly, I don't really see the issue since this is used to further the sciences.
There is always a greater good that can be used to strip people of what they want is their right to a private and quiet life, what was yesterday, encryption in communication for safety, their medical data for research? There is always something to take away, I don't care about medical research, it is my right to have my medical data not shared with researchers, if someone else wants, then it's their right, I don't see why the default has to be to take away
The change in what’s happening is important. The original social contract just assumed it would always be private. Now that’s changing. Possibly if the notion was built in that the public health system would reserve the right to effectively monetise your data… the entire genesis of it would have happened differently. I’m not saying it’s wrong. I’m saying changing the rules halfway through means you can’t appeal to the original contract.
Rules change all the time around tax and healthcare. This is also not about directly monetizing data but to benefit the recipients of public healthcare which is a lot more than just finding revenue sources.
As said before, there is always a benefit that needs removing the right to privacy, I was not saying it is wrong, I was saying to make it opt in so that people can be part of the benefit by choice if they want to
And it's a legal challenge to make sure that everyone understands how and why they should opt out, even my grandma.