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What would you change the title to, such that it fits your own guidelines?



Something like "a girl's struggle to get diagnosed", which is what the article is about.


That's rather vague and leaves out that it's a rare genetic disease.


But the article isn't about the disease, it's about the struggle for diagnosis. What disease she eventually turned out to be diagnosed with is almost an afterthought inn the article, despite what the original title implies.




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