I have a form of cystic fibrosis. I was not diagnosed until my mid thirties. It is genetic. After I was ID'd, they tested my sons. My oldest has the same diagnosis. I spent about 3.5 months bedridden prior to the diagnosis. After the diagnosis, doctors told me "people like you don't get well." Given that I had managed to live that long without a diagnosis, I figured that, armed with new info, I could surely improve on my track record.
Thirteen years later, I am drug free, the hole in my left lung has healed up, and most of the world thinks I am a teller of tall tales. I talk a lot less about it than I used to. I would like to help other people but talking about it mostly gets a shitstorm of controversy aimed at me. Apparently, former homemakers aren't allowed to know more than doctors. Or something.
If you wish to discuss it further, I suggest you take it to email.
Thirteen years later, I am drug free, the hole in my left lung has healed up, and most of the world thinks I am a teller of tall tales. I talk a lot less about it than I used to. I would like to help other people but talking about it mostly gets a shitstorm of controversy aimed at me. Apparently, former homemakers aren't allowed to know more than doctors. Or something.
If you wish to discuss it further, I suggest you take it to email.
Thanks.